The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

ALS Reversals – What are they?

Members of the group received an overview of ALS reversals at a recent meeting, further details can be seen below: ALS Reversals   Rick Bedlack, a neurologist at Duke University... Read more →