The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

Zebrafish for MND drug discovery

The SMND RAG are thankful to Dr Alexander McGown who presented ‘Fishing for cures: Zebrafish for MND drug discovery’ at the last quarterly meeting.  Dr McGowan is working as part... Read more →