The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

Become a patient representative

Would you like to be involved in the decisions made about MND research studies?  Do you think you could act as a delegate for people with MND?  Become a volunteering patient... Read more →