The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

New members welcome

Can you help researchers understand Patients’ & carers’ priorities? The aims of the Research Advisory Group are to: Enable the perspectives of patients and carers to be included in research... Read more →