The group's mission is to empower and enable patient and public involvement in motor neurone disorders research
Our group

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

SITraN Open Day

The SMND RAG will have a presence at the next SITraN open day where you can find out about the research into neurodegenerative diseases like Motor Neurone Disease Parkinson’s Disease... Read more →

Consumers in Research event

Members of the SMND RAG will have a presence at the Consumers in Research event on 20th May 2016 – The Circle, 33 Rockingham Lane, Sheffield, S1 4FW.  The event... Read more →