The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

Researcher Feedback

One of the main aims of the SMND RAG is to assist researchers by reviewing research study documentation ensuring that patients and carer’s views are considered. A researcher who recently... Read more →