The group's mission is to empower and enable patient and public involvement in motor neurone disorders research
Our group

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

NICE Guidelines update

Last year (Feb 2016) NICE published a national guideline about the assessment and management of Motor Neurone Disease (MND-assessment and management nice.org.uk/guidance/ng42) which aims to improve care for people living... Read more →

MyTube

The new MyTube website has now been released, please click here to visit the web-based resource for more information about feeding tubes. Read more →