Sheffield Motor Neuron Disorders Research Advisory Group
The Sheffield Motor Neuron Disorders Research Advisory Group (SMND RAG) brings together people living with or affected by MND to inform research. We are a committee of individuals that use our knowledge of living with the disease to join in the fight against it by helping researchers.
Our aims
Enable patient and carer perspectives to be included in research proposals
Identify and prioritise research topics important to patients and their families
Improve recruitment to research studies
Aid researchers to write clear lay summaries and study information sheets
Help share research findings with a wider audience
Raise awareness of MND research
News
Can you help researchers understand patients’ and carers’ priorities? November 2021
Hot off the press November 2021
An open letter to MND researchers June 2021
MND Research Article summary – Ben Hall, PhD student, University of Sheffield November 2020
MND Research Article summary – Sarah Roscoe, PhD student, University of Sheffield November 2020