The group's mission is to empower and enable patient and public involvement in motor neurone disorders research
Our group

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

MyTube

The new MyTube website has now been released, please click here to visit the web-based resource for more information about feeding tubes. Read more →

Cough Augmentation

The equipment for cough augmentation is now back in production so the MND Care Centre are able to start actively recruiting into this service evaluation. Read more →