The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

Researcher Feedback – ProSec3

ProSec3 – A multi-centre evaluation of excessive saliva management in patients with motor neurone disease Recruitment recently commenced on a UK-wide study headed by Sheffield’s Prof Christopher McDermott called ‘ProSec3’.... Read more →