The group's mission is to empower and enable patient and public involvement in motor neurone disorders research
Our group

Our aims

  • Enable patient and carer perspectives to be included in research proposals
  • Identify and prioritise research topics important to patients and their families
  • Improve recruitment to research studies
  • Aid researchers to write clear lay summaries and study information sheets
  • Help share research findings with a wider audience
  • Raise awareness of MND research

Cough Augmentation

The equipment for cough augmentation is now back in production so the MND Care Centre are able to start actively recruiting into this service evaluation. Read more →

Skype

The SMND RAG are able to offer members the opportunity to attend meetings remotely using Skype.  We can have up to ten video streams (9 plus the SMND RAG) visible... Read more →