The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

News Archive: 2011

December 2011

New group member

wyatt_sarahHello I’m Sarah; a photographer living in Derbyshire and the newest member of the Research Advisory Group.

My lovely Dad had MND and sadly passed away on October 6th 2011 after a valiant fight against the disease.  I joined just before Dad passed away and I’m so grateful that I had the chance to tell him about the group.  Although Dad had lost his speech he was still able to smile and put his thumb up in approval at me joining.  I told Dad that I was going to play a small part in finding a cure for MND and I’m not about to let him down.

The Group have made me feel so welcome and its brilliant to see how enthusiastic and positive everyone is. The SITraN scientists have made great progress in MND research already and this gives me hope that one-day a cure will be found.

July 2011

Patrick the Optimist exhibition secured in Ponds Forge

Thanks to group member Sarah Dunn the national MND awareness campaign “Incurable Optimism” will be coming to Ponds Forge in July/August.

June 2011

Welcome to new group member

Sarah Wyatt, from Denby Village. Look out for Sarah’s profile on our member pages soon.

Quarterly meeting update

Thank you to Dr Christopher McDermott for his excellent summary of the clinical research currently on-going in SITraN. The meeting was also attended by MND Association representative Belinda Cupid who was there to find out more about the group and how we promote patient and public involvement in research.

May 2011

Incurable Optimism comes to Sheffield

Press Coverage:
www.thestar.co.uk/news/health/mnd_patient_ aims_to_spread_optimism_with_100_paintings_1_3389479

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