The group have been instrumental in creating an MND research questionnaire that is now available to patients, family members and carers at the MND Care Centre in Sheffield. If you have any thoughts on areas that should be prioritised for research and would like to complete a form please click here, completed forms should be returned to firstname.lastname@example.org or via post to Annette Taylor, SITraN, 385a Glossop Road, Sheffield, S10 2HQ
Non-Invasive Ventilation (NIV) is an effect treatment for patients with MND, however research carried out by researchers at SITraN identified that many patients struggled to use it or gave up early because they we not fully aware of the potential benefits. The new MyNIV web resource allows patients and their carers to access all the information they need about NIV and how to use it at home.
Telehealth in Motor Neurone Disease (TiM) is a bespoke telehealth system in form of an app to monitor patients’ needs continuously and flag up problems to ensure patients can get the right support at the right time. The initial trial will recruit 40 patients at the Sheffield MND Care Centre funded by a National Institute for Health Research (NIHR) fellowship to trial manager Dr Esther Hobson. This pilot study will assess how well the telehealth system works. If successful, a larger trial will follow with the aim to make this technology widely available to MND patients.
The fundraising team have made great progress in their aim to raised £10,000 for the Sheffield Institute of Translational Neuroscience (SITraN) and the Motor Neurone Disease.
How and why did you get into MND research?
Neuroscience has always been a subject of huge fascination for me, mainly as I have a younger brother who is severely Autistic and my father was diagnosed with Schizophrenia when I was at secondary school; so the brain and how it works I could say is an innate interest of mine from a very young age. After reading Neuroscience at the University of Sheffield, I soon began to realise that many neurological disorders were centred on the idea of cell survival and when I saw this PhD project working at SITraN to help promote the cell survival of neurons in MND I was instantly attracted to apply.
Sir Andrew Cash, Chief Executive of Sheffield Teaching Hospitals NHS Foundation Trust, Sir Keith Burnett, Vice-Chancellor of the University of Sheffield and Professor Dame Pamela Shaw, Consultant Neurologist at Sheffield Teaching Hospitals NHS Foundation Trust and Director of the Sheffield Institute of Translational Neuroscience (SITraN) have taken the icy challenge to raise awareness for MND research outside SITraN. More information and photos can be seen on the SITraN website.
Please, donate to support MND research on justgiving.com/IceBucket4MND or Text ICED55 £5 to 70070.
The SITraN team accepted @SchulichMedDent‘s ALS Ice Bucket Challenge in true team spirit with Dr Adrian Higginbottom as chief coordinator of rows of SITraN professors, researchers, staff and students getting thoroughly soaked – watch the video here. We nominate #MND#ALS research labs @Sydney_Uni @KingsCollegeLon & @tcddublin – Your turn Prof Ammar Al-Chalabi (Kings College London), Prof Orla Hardiman (Trinity College Dublin), and Prof Matthew Kiernan (University of Sydney)!
Please, donate and support ALS/MND research at http://www.justgiving.com/mndassoc or Text ICED55 £5 to 70070 to make each bucket count!
We are a team raising aiming to raise £10,000 for the Sheffield Institute for Translational Research (SITraN) and Motor Neurone Disease Association. Both charities are leading lights in the fight against Motor Neurone Disease (MND), a cause which is close to the hearts of many team members.
SITraN is a world leading centre for research into neurodegenerative disorders including MND, Alzheimer’s disease, Parkinson’s disease and spinal muscular atrophy. Based at the University of Sheffield and opened by HM the Queen in 2010 SITraN has a vision to turn ground breaking research into real patient benefit.
The MND Association is the UKs national charity focused on MND through campaigning, research funding and a network of local branches. Money raised will go to the South Yorkshire branch which is run by a friendly group of volunteers offering essential support to patients, carers and their families with regular meetings, awareness and fundraising events.
Richard Mead, John Cooper-Knock and Xander Beer who are all scientific researchers from SITraN took on the challenge of cycling to the European MND research conference in Leuven in Belgium to raise money for the Streaking Meerkats, who are aiming to raise £10,000 to support MND research. They set off from the doors of SITraN in Sheffield and arrived safely in Leuven in time for the conference. More information and photos can be seen on the SITraN website here.
The SITraN open day took place during the afternoon of the 11th July 2014 inviting members of the public and key stakeholders from the field to tour the facilities within SITraN and learn about the research that is taking place through lectures presented on the day and tours of the laboratories. Work stations were set up to explain scientific and clinical work taking place within translational neuroscience at Sheffield.
It was a busy day enjoyed by guests with many visitors expressing their interest in what the event offered. One visitor expressed that ‘We were heartened by the dedication of the people we met and the impressive array of new equipment. It also made us better understand the massive challenges you face in finding an effective treatment for these devastating conditions.’