The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

News Archive: 2016

December 2016

MyTube

The new MyTube website has now been released, please click here to visit the web-based resource for more information about feeding tubes.

October 2016

Cough Augmentation

The equipment for cough augmentation is now back in production so the MND Care Centre are able to start actively recruiting into this service evaluation.

August 2016

Skype

The SMND RAG are able to offer members the opportunity to attend meetings remotely using Skype.  We can have up to ten video streams (9 plus the SMND RAG) visible at one time, if there were to be any extras they would only be able to join as audio.

July 2016

Gene therapy strategy against C9ORF72 related ALS

Dr Guillaume Hautbergue gave an interesting overview on the gene therapy project his team are currently working on. We look forward to further updates on the progress.

April 2016

SITraN Open Day

The SMND RAG will have a presence at the next SITraN open day where you can find out about the research into neurodegenerative diseases like

  • Motor Neurone Disease
  • Parkinson’s Disease
  • Alzheimer’s Disease

You will be able to meet the scientists, watch demonstrations and take a tour through the labs.

To register please email neuroscience@sheffield.ac.uk

March 2016

Consumers in Research event

Members of the SMND RAG will have a presence at the Consumers in Research event on 20th May 2016 – The Circle, 33 Rockingham Lane, Sheffield, S1 4FW.  The event provides an opportunity to talk to patient advisory panels about their experiences of being involved in research, and helping to shape future research and improve patient care.  The event is informal so please drop in anytime 12.00 – 3.00.

For further information and to reserve a place please, contact Lydia Harris lydia.harris@sth.nhs.uk

January 2016

The Involve Me Network

‘Involve me, Sheffield CCG’ has been set up as a way of involving people who care about their local NHS and who would like to be kept updated, or get involved and have their say, on commissioning decisions for the benefit of Sheffield people.

They want to create a relationship with as many people as possible to give people the opportunity to hear what’s really going on in the local NHS ‘straight from the horse’s mouth’ and to gather views on health and social care to inform the key decisions that we make.

For more information please click here

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