The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Associate Member – Why I joined the SMND RAG

May 2017

In 2012 I was contacted by the Alumni office of Sheffield University as  I was a student there from 1966 to 1969. Whilst speaking to the student representative of the Alumni office, I mentioned that, whilst studying at Sheffield,  I met my  late husband who was also a student at Sheffield.  He died of Motor Neurone Disease in 2011.  The student arranged for me to visit the university taking in an open day at SITraN.  I was extremely  interested to visit SITraN and very impressed by the excellent research being carried out.

Whilst at the open day, I became an associate member of the group.  I have been very interested  in developments in research and feel that, if required, I am able to comment on the needs and experiences of patient and carer.  I am also happy to proof read any documents.

I think my experience  is as expected and  I do hope to be able to visit SITraN again.

I am very pleased that SITraN  exists.  MND  is a terrible disease.

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