The group's mission is to empower and enable patient and public involvement in motor neurone disorders research

Researcher Feedback

March 2018

One of the main aims of the SMND RAG is to assist researchers by reviewing research study documentation ensuring that patients and carer’s views are considered. A researcher who recently accessed the group for this service provided the following feedback:

The group were invaluable when we were submitting our grant application. They gave us some really useful feedback on our proposal and allowed us to further refine our ideas… and we ended up getting the grant! So a huge thank you to the group for your support – it is greatly appreciated.

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