Hello I’m Sarah; a photographer living in Derbyshire and the newest member of the Research Advisory Group.
My lovely Dad had MND and sadly passed away on October 6th 2011 after a valiant fight against the disease. I joined just before Dad passed away and I’m so grateful that I had the chance to tell him about the group. Although Dad had lost his speech he was still able to smile and put his thumb up in approval at me joining. I told Dad that I was going to play a small part in finding a cure for MND and I’m not about to let him down.
The Group have made me feel so welcome and its brilliant to see how enthusiastic and positive everyone is. The SITraN scientists have made great progress in MND research already and this gives me hope that one-day a cure will be found.
Thanks to group member Sarah Dunn the national MND awareness campaign “Incurable Optimism” will be coming to Ponds Forge in July/August.
Sarah Wyatt, from Denby Village. Look out for Sarah’s profile on our member pages soon.
Thank you to Dr Christopher McDermott for his excellent summary of the clinical research currently on-going in SITraN. The meeting was also attended by MND Association representative Belinda Cupid who was there to find out more about the group and how we promote patient and public involvement in research.
Press Coverage: www.thestar.co.uk/news/ dylan_s_design_for_life_1_1829569
Thank you to pupils at Birkdale School, Sheffield for designing the logo for SMND RAG.