‘A Month for Optimism’ – the MNDA are running a campaign to increase awareness of the condition and raise money to support care services and research for MND patients. More information about these events can be seen here.
Sheffield LINk (Local Involvement Network) has written an article about the SMND RAG to inform local people about the group and note that new members are welcome. Sheffield LINk gives local people the chance to influence health and social care services in Sheffield, finding out what people like and dislike and then working with those who plan and run the services to improve them. Anyone living in Sheffield or travelling into the city to use health and social care services can get involved. Read the article on page 4 of the April 2012 bulletin.
Hello I’m Sarah; a photographer living in Derbyshire and the newest member of the Research Advisory Group.
My lovely Dad had MND and sadly passed away on October 6th 2011 after a valiant fight against the disease. I joined just before Dad passed away and I’m so grateful that I had the chance to tell him about the group. Although Dad had lost his speech he was still able to smile and put his thumb up in approval at me joining. I told Dad that I was going to play a small part in finding a cure for MND and I’m not about to let him down.
The Group have made me feel so welcome and its brilliant to see how enthusiastic and positive everyone is. The SITraN scientists have made great progress in MND research already and this gives me hope that one-day a cure will be found.
Thanks to group member Sarah Dunn the national MND awareness campaign “Incurable Optimism” will be coming to Ponds Forge in July/August.
Sarah Wyatt, from Denby Village. Look out for Sarah’s profile on our member pages soon.
Thank you to Dr Christopher McDermott for his excellent summary of the clinical research currently on-going in SITraN. The meeting was also attended by MND Association representative Belinda Cupid who was there to find out more about the group and how we promote patient and public involvement in research.
Press Coverage: www.thestar.co.uk/news/ dylan_s_design_for_life_1_1829569
Thank you to pupils at Birkdale School, Sheffield for designing the logo for SMND RAG.