Our mission is to empower and enable patient & public involvement in motor neuron disorders research

Head up Project – User and carer participation wanted

June 2012

The Head Up Project is an attempt to develop a neck collar specifically designed to support the needs of people with MND who experience neck weakness. The project will take place over the next 12 months. During this period we would like to draw on the knowledge of individuals with experience of MND. We will be running regular User/Carer group workshops based in Sheffield where we will show the latest designs and plans for our new neck collar. At the workshops we will gain User and Carer feedback on the design and modify the evolving neck collar to incorporate the priorities of individuals with experience of MND. Workshops will take place in Sheffield thus individuals would ideally live within an acceptable travelling distance. However, those that live further a field or are unable to travel may be able to contribute by other means (home visits, email etc). If you would like to be involved in one or all of the following:

  • Attendance of 1-4 user/carer workshops in Sheffield
  • Accepting home visit discussions (South Yorkshire area)
  • Email correspondence/feedback/knowledge transfer

Please contact Andrew Stanton for further information on the following details:

Tel: 01142256766

a.stanton@shu.ac.uk

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