Our mission is to empower and enable patient & public involvement in motor neuron disorders research

MND Charter

September 2013

Members of the SMND RAG group  (Hannah Hollinger and Emily Goodall) met with the Vice-Chancellor of the University of Sheffield Professor Sir Keith Burnett to talk to him about the Motor Neurone Disease Association MND charter which aims to achieve quality of life, dignity and respect for people with MND and their carers. This event was organised to raise the profile of this condition and gain support for quality of care for people with MND and their carers from key individuals within the healthcare  field. These group of individuals whose conditions and needs can change rapidly need a responsive and efficient service to ensure timely provision of care – something that the MND Charter promotes. The more people that understand this condition and its needs, the better the care provision can be.

Keith Burnett MND Charter signing

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