Our mission is to empower and enable patient & public involvement in motor neuron disorders research

Become a patient representative

May 2017

Would you like to be involved in the decisions made about MND research studies?  Do you think you could act as a delegate for people with MND?  Become a volunteering patient representative for the UK Motor Neurone Disease Clinical Studies Group (UK MND CSG).

The UK MND CSG are looking to appoint a patient representative to join their group that is responsible for developing and monitoring portfolio of MND research studies in the UK.

The representative would have the chance to provide their perspective on new and upcoming clinical studies and to offer advice to other patients when requested.  You would be required to take part in monthly teleconferences (approximately 1 hour long) and to read relevant meeting papers before these meetings (provided via email communication).

If you think you would be a good patient representative, please read the Terms of Reference (pages 11-12) to familiarise yourself fully with the role and the related duties.  If you wish to apply, please send your CV and a supporting letter explaining why you are interested in joining the group to h.hollinger@sheffield.ac.uk by 21 May 2017.

For any further questions about this position, please contact Hannah Hollinger.

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