Our mission is to empower and enable patient & public involvement in motor neuron disorders research

News Archive: 2020

May 2020

MND Clinical Studies – Website launch!

The UK Motor Neurone Disease Clinical Studies Group has launched the updated clinical research studies section of their website.

It enables users to find out about all the MND clinical research studies taking place across the UK, in a patient-friendly and accessible format.


The MND CSG’s mission is to bring together the expertise and enthusiasm to develop and improve both the quality of MND research in the UK, and the number of research studies available for people living with MND to participate in nationally. The Group currently includes 36 members with leading MND neurologists, palliative care specialists, patient and carer representatives and other healthcare professional with an interest in MND clinical research.

Have you #MNDRegisteredYet?

The MND Register of England, Wales and Northern Ireland (‘the MND Register’) is a research study funded by the MND Association, and led by Professor Ammar Al-Chalabi at King’s College London and Professor Kevin Talbot at University of Oxford.

It aims to collect information about every person living with MND.

To register please click here

News Archives