Our mission is to empower and enable patient & public involvement in motor neuron disorders research

News Archive: 2015

July 2015

The Reach project

The Reach project aims to improve the quality of life for patients living with MND and/or stroke patients. The development team wants to carry out a study to understand the experiences of patients with upper limb muscle weakness in their everyday lives.

The study is using a user centered design process, to determine the key movements that the patient needs to carry out day-to-day tasks. The results from this study will be fed into further research into devices that can be used to improve the quality of life of people with upper limb weakness.

If you are interested in taking part or would like further information, please contact Annette Taylor on annette.taylor@sheffield.ac.uk.

SITraN Newsletters

The latest version of the SITraN newsletter has been released and includes an article on a member of the SMND RAG Julie Drakeley. Please click here to download.

June 2015

SMND RAG Success

Inspired by the success of the SMND RAG, another group has invited a member to talk about the benefits of being a member of the research advisory group at their meeting.

PPI Training

As a result of attending the Consumers in Research event and having a presence there, we are aware that the trust is offering PPI training.

SITraN Open Day

The SMND RAG will have a presence at the next SITraN open day where you can find out about the research into neurodegenerative diseases like

  • Motor Neurone Disease
  • Parkinson’s Disease
  • Alzheimer’s Disease

You will be able to meet the scientists, watch demonstrations and take a tour through the labs.
Please click here to register

May 2015

New members welcome

The ‘Sheffield Motor Neurone Disorders Research Advisory Group’ (SMND RAG) is a committee that brings together patients and carers from the South Yorkshire area who wish to be actively involved in ensuring patient and public involvement in Sheffield MND research.  If you are interested in becoming involved with the group you can access more details about the role and application form here or please contact us for more details. You are also welcome to attend a meeting and can have a tour of SITraN to see if you would like to become involved with this group.

New member biography – Linsday Lonsborough

lindsay_lonsboroughI sadly lost my husband Mark last year who had MND for 13 years. I am currently a PA for two clients whom both have MND. I feel I have a lot to contribute not only in a professional capacity but as a full time carer too. I am extremely passionate to get involved in any aspect of research  that I can.

April 2015

Consumers in Research event

22nd April 2015 12.00-3.00 Sheffield Teaching Hospitals NHS Trust is organising a PPI event at The Circle in Sheffield.  For further information please click here.

March 2015

MND Study Day

SITraN will again be hosting the annual MND study day on Thursday 14th May 2015.  The study day is aimed at medical, health and social care professionals who care for and support people living with MND.  For more information please email Annette Taylor at  annette.taylor@sheffield.ac.uk.

Science week

SITraN researchers visited local schools with fun activities to teach about “Your amazing brain”.  For more information please click here.

News Archives