Our mission is to empower and enable patient & public involvement in motor neuron disorders research

How We Assist Research

The group assists researchers in ensuring that patients’ and carers’ views and needs are considered within Motor Neuron Disorders research areas.

It aims to:

  • Enable patients’ and carers’ perspectives to be heard, which might otherwise be overlooked
  • Provide knowledge for the researchers from the individual’s experience and contribution
  • Identify and prioritise research topics that are important to patients
  • Improve recruitment to research studies
  • Help in identifying improved measures for research outcomes
  • Build public credibility and trust in clinical research, and improve external evaluations
  • Assist in identifying any barriers to effective involvement
  • Comment on research project documentation
  • Help write lay summaries for research proposals and Research Ethics Committees

Members of the group have experience of being on trial steering committees and have been involved in project design, development and implementation stages of research studies. Integrating public and patient involvement (PPI) into your research study can greatly increase your chances of getting a quality project through the funding, recruitment and dissemination of findings process.

Meet the Researcher

Your chance to get to know MND researchers a little better: our Meet the Researcher section includes interviews with SITraN scientists and clinicians.